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Making friends with a skeleton

We had a letter from our local doctor’s surgery a few months ago, inviting Ellen for an ‘annual health check’.  I read this letter with a mixture of surprise, pleasure and absolute dread.

Surprise, because it seemed to me that for once, the NHS was being proactive.  Ellen hasn’t been to the doctors for about ten years, but I was fully expecting another ten if not more before an invitation such as this arrived on the doormat.

Pleasure, because I was aware that this would be a perfect opportunity for Ellen to experience going to the doctors without the added pressure of actually being unwell.  In my mind’s eye I could see all the social story preparations preparations and the experience sharing afterwards which would be so beneficial to Ellen’s RDI journey.

The dread was because, as anyone who cares for someone with special needs will know, they can be somewhat unpredictable.  The last time I remember being in the doctors surgery, she took some I’ve been to the doctor stickers off his desk and stuck them on a photograph of his two daughters.  Right over their faces.  Yup.

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Ellen checking in

But he’ll have forgotten about that – hopefully – and despite answering every question he asked her with ‘car‘, Ellen submitted to the examination pretty well.  By pretty well I mean that he managed to listen to her heart and lungs and examine a small cyst she has under her eye.  She point-blank refused to have her blood pressure taken (even over her jumper) and bent forward, covering her arms over her stomach when he asked whether he could examine it – fantastic non-verbal communication!

Her refusals weren’t helped by his poor choice of expressive language.  Doctors will (despite prior briefing) insist on beginning every sentance with ‘would you mind if I...? Which obviously gives truculent patients the perfect opportunity to answer ‘no‘ at every turn, thus immediately stymying the doctor.  Much better to open with ‘Now I’m going to.….’ but they never do, it’s obviously not in the training.

Still, I think it was a pretty successful visit.  Ellen particularly enjoyed putting a Santa hat on the model skeleton and putting it in different poses, and as there were no stickers in sight, the rest of the office remained unmolested.  This time anyway.

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Happy Christmas !

 

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Sleeping Yoga

Today Ellen and I went for a taster yoga session.  This involved a great deal of preparation, including stocking up on plenty of carbs before the workout.

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Preparing for the workout ahead

Ellen did some yoga at school a few years ago and often ‘strikes a pose’ being surprisingly flexible for one who’s inclination tends towards the sedentary.

Lynn is a very experienced teacher of yoga for children and those with special needs and she let Ellen have a good look around the studio before we started our taster session.  I filled in the obligatory information form and then we removed our shoes to step into the studio.  Ellen sat and watched as Lynn and I moved through a few basic moves (including three ‘ommmmm’ chants at the beginning) but then obviously lost interest in us and seemed to wander off towards the door.

Not to worry, she had just decided she was more comfortable with her shoes on.  Again Lynn was fine with this and praised Ellen when she returned, shoes on, for her standard legs apart hands on hips pose ‘good idea Ellen, let’s do some side bends’ she encouraged.  Ellen did join in, even with the Tree pose, until then she had an unfortunate mishap related to the monthly female condition and obviously felt rather uncomfortable.  Another small interruption followed whilst Ellen went to the loo, but with no change of clothes available, even I was beginning to wonder what on earth would happen next…

However, Lynn remained warm and inclusive throughout the session, nothing Ellen and I could throw at her rocked her from her yogic calm.  Finally, we reached the relaxation stage, which was obviously Ellen’s favourite as she stayed in it long after Lynn and I had got up, chatted, got coats on and were ready to leave.  Ellen’s verdict…? She’d like to go again….hopefully Lynn will not have left the country…

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Peace at last